Mark and Ben, two local children, both suffer from a mutation on the SCN2a gene which causes a spectrum of ailments from developmental delays to severe intractable epilepsy. Most of the children with this diagnosis are unable to walk, talk, eat, and suffer from daily seizures, pain, and Autism. Their families have formed a foundation, the FamilieSCN2a Foundation to promote and fund research to find a cure for our children. The foundation supports over 120 families with this rare genetic condition.
Half of the profits from this event will be donated to the FamilieSCN2a Foundation.